Living with epilepsy isn’t always easy. The physical, mental, and emotional effects of both seizures and the medications can take a daily toll on the person living with epilepsy, creating challenges that may not be visible to others. The lack of understanding around epilepsy within the general public adds yet another degree of difficulty for people living with epilepsy. Yet, a life lived with epilepsy can provide great rewards including defying the expectations of others, creating a rich and fulfilling life, and inspiring others with epilepsy to pursue their own goals and dreams.
On this week’s Seizing Life, epilepsy patient, counselor, and author Jon Sadler discusses his 50-year journey living with epilepsy. Jon’s experiences reflect many of the challenges and concerns of people with epilepsy including stigma, employment, family, dealing with changing treatments and side-effects, and undergoing life-changing brain surgery. Jon reflects on how his personal experiences have shaped his perspective on epilepsy and how this inspired him to become a counselor for fellow patients and caregivers. Jon’s story is a microcosm of what has been accomplished within the epilepsy community during the past 50 years, as well as a directive highlighting the work that still needs to be done.
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