In 2022, CURE Epilepsy initiated the SUDEP Data Standardization Project to create standardized data collection and reporting language to help preclinical researchers characterize and understand SUDEP animal models, with the aim of improving translation of animal models to the clinical setting. As a result, SUDEP common data elements (CDEs) and case report forms were developed to standardize data collection and reporting language for preclinical SUDEP research.
This webinar will help viewers understand the history and development of epilepsy CDEs with a special focus on preclinical Sudden Unexpected Death in Epilepsy (SUDEP) CDEs that have been developed in collaboration with CURE Epilepsy and the SUDEP research community. Speakers will discuss the impact CDEs can have on the translational relevance of preclinical investigations, and how the CDEs can be used in the context of daily preclinical research. There will also be a live feedback session with the speakers following the webinar. To learn more about the SUDEP CDEs and case report forms, you can preview them here. This webinar is hosted by the ILAE Young Epilepsy Section and will be moderated by Dr. Cecilie Nome.
After this webinar, the participant will:
- Understand the history and development of common data elements (CDEs) and use in epilepsy research.
- Be able to apply practical use of SUDEP CDEs in their preclinical research, including for data collection and data analysis.
- Appreciate the importance of the use of SUDEP CDEs when applying to funding agencies.
This webinar, hosted by the ILAE Young Epilepsy Section, will help viewers understand what SUDEP CDEs are, what impact they could potentially have on the translational relevance of their preclinical investigations, and how the CDEs can be used in the context of daily preclinical research.
The information contained herein is provided for general information only and does not offer medical advice or recommendations. Individuals should not rely on this information as a substitute for consultations with qualified healthcare professionals who are familiar with individual medical conditions and needs. CURE Epilepsy strongly recommends that care and treatment decisions related to epilepsy and any other medical condition be made in consultation with a patient’s physician or other qualified healthcare professionals who are familiar with the individual’s specific health situation.