Infantile Spasms Awareness Week 2019
Infantile Spasms are a medical emergency. Prompt diagnosis and treatment are critical, but this is challenging because infantile spasms can be mistaken for normal baby movements or other disorders that don’t demand urgency.
Source: Infantile Spasms Awareness Network video, produced by the Child Neurology Foundation
Infantile spasms is a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. Infantile spasms is characterized by subtle seizures which can have large neurological effects, potentially leading to developmental delays and cognitive and physical deterioration.
Sadly, many primary care doctors and parents alike are not familiar with the signs and symptoms of infantile spasms. So, many children with infantile spasms do not receive treatment during the critical window within the weeks and months after the emergence of symptoms.
We encourage you to share the following resources with your network to raise awareness about this serious condition.
Seizing Life® Podcast, “Infantile Spasms: Know the Signs and Take Action”
Webinar on the Diagnosis and Treatment Challenges of Infantile Spasms
CURE is proud to be a part of the Infantile Spasms Action Network. This coalition of organizations is committed to raising vital awareness about IS and it’s impacts on children.