SUDEP Action Day 2021
Wednesday October 20th is SUDEP Action Day, a global event whose aim is to bring the epilepsy community together to raise awareness of SUDEP (Sudden Unexpected Death in Epilepsy) and the associated risks SUDEP has on those living with epilepsy. Not everyone with epilepsy is informed about SUDEP, which can increase the chance of worsening seizures, injury or early death.
Join us throughout the week beginning October 18 for important information about SUDEP from researchers, community members, and more. We will be adding SUDEP curated content each day of the week. Please encourage your friends and families to share this information. You can also follow us on Facebook, Instagram, and Twitter for all updates regarding SUDEP Action Day 2021.
It’s #Time2Change what people know about SUDEP, so they can reduce the risk to their loved one living with epilepsy.
Risks Factors and Ways to Mitigate Risk
Far too many people are unaware of SUDEP, its risk factors, and ways to mitigate these risks.
Help us spread the word and initiate critical conversations about this awful consequence of epilepsy. Share these infographics with your friends and family by posting them on social media.
Webinar | SUDEP and Breathing
A webinar that provides an introduction to basic concepts and terminology for how the respiratory system functions. It also provides evidence for breathing dysfunction caused by seizures and reviews the data for breathing dysfunction as a potential cause as well as a marker for SUDEP, and a possible means to intervene and prevent SUDEP.
Seizing Life Podcast
An important Seizing Life episode featuring Dr. Elizabeth Donner, Staff Neurologist and Director for the Epilepsy Program at Toronto’s Hospital for Sick Kids. Dr. Donner was a 2009 CURE Epilepsy grantee whose research helped identify that the incidence of SUDEP in children with epilepsy was much higher than previously thought, and was actually 1 in 1,000 which is the same as it is for adults.
Dr. Elizabeth Donner provides an overview of SUDEP, including what we currently know about SUDEP, what are the risks and ways to mitigate risks associated with SUDEP, and what research is discovering that can help us find a cure for this devastating outcome of epilepsy.
Webinar | SUDEP and the Heart
Thursday October 21st we had a free live webinar on how inherited neuronal or cardiac diseases may lead to electrical disturbances in both the brain and heart, how altered cardiac function may lead to SUDEP, and why it is critical for the epilepsy community to take a holistic approach to fully understand biological changes that ultimately cause SUDEP.
The Webinar stream will be available Wednesday October 27th.
Discovery | Dr. Franck Kalume
Research discoveries for SUDEP identified by CURE Epilepsy grantee Dr. Franck Kalume, an Associate Professor in the Departments of Neurological Surgery, Pharmacology, and Global Health at the University of Washington in Seattle.