Why is SUDEP Awareness Needed?
Sudden Unexpected Death in Epilepsy (SUDEP) is perhaps the most devastating possible consequence of epilepsy. Unfortunately, not everyone diagnosed with epilepsy is informed about SUDEP, the risks of SUDEP, or how to mitigate their risks. SUDEP Action Day is aimed at helping raise awareness of SUDEP and inform the epilepsy community about steps one can take to reduce their risks. Raising awareness, increasing education, and starting conversations are all steps needed to help bring an end to SUDEP.
As the leading private funder of SUDEP research, CURE Epilepsy is honored to support SUDEP Action Day and will help increase awareness and spark important dialogues about epilepsy and SUDEP.
Learn more about SUDEP Action Day
2026 SUDEP Action Day: Let’s #StopSUDEP together
The theme for SUDEP Action Day 2026 is #StopSUDEP. By sparking open conversations around seizure safety and risk management, lives can be saved. Every shared story or expert insight helps build a stronger, better-informed community dedicated to preventing future tragedies.
SUDEP Risk Factors
Early age of epilepsy onset
Generalized tonic-clonic seizures
Uncontrolled or frequent seizures
Not taking meds as prescribed
Ways to Lower Risk
Take meds as prescribed
Avoid known seizure triggers
Get enough sleep
Avoid drinking alcohol
Train family in seizure first aid
Consider night-time monitoring
Share with Your Community
Click on the graphics to download and share on social media.
SUDEP Stories
Stronger Together: The Cameron Boyce Foundation is Now Part of the CURE Epilepsy Family
CURE Epilepsy and The Cameron Boyce Foundation (TCBF) work together to fund research that pushes us closer to cures for epilepsy and ending SUDEP. The collaboration brings together two organizations long aligned in their commitment to epilepsy research and awareness.
To celebrate our partnership, SK Life Science is matching all gifts up to $10,000
Donate
Other Awareness Days
Check out some of the other awareness days on the epilepsy community calendar.
