Abstract published in Seizure
In the present study, the researchers sought to describe the long-term effect of pediatric convulsive status epilepticus (CSE) on health-related quality of life (HGQoL) in children recently diagnosed with epilepsy. Between 2004 and 2007, children with newly-diagnosed epilepsy were enrolled through a Canada-wide population study, the Health-Related Quality of Life Study in Children with Epilepsy Study.
In total, 204 adolescents and young adults were followed over the long-term, 12 of whom had a history of CSE. In the two-year follow-up with the CSE, HRQoL was poorer. In the 10-year follow-up, however, HRQoL was comparable for youth with and without CSE. Such results indicate that in the short term after CSE, compromised HRQoL could resolve over the long term. Focusing on patient-reported outcomes when reporting the long-term consequences of CSE will be important for future studies.