Greetings CURE Epilepsy community,
As I shared with you last week, November is Epilepsy Awareness Month, a month in which the community comes together to raise awareness about how common epilepsy is, how stigma remains a challenge for those living with epilepsy, and how essential it is that we raise critically needed funds to invest in research to achieve our goal of a world without epilepsy. We all have a role to play in raising awareness. CURE Epilepsy was given the opportunity to ring the Closing Bell® at the New York Stock Exchange and we used it to kick of Epilepsy Awareness Month and raise awareness in the financial community (you can watch it here). On a personal level, I have painted my nails bright purple and am wearing a purple ribbon all month to draw attention and share with those around me. So, what are you doing this month to bring attention to epilepsy?
For those of you who follow us on Facebook, Instagram, Twitter, or LinkedIn you will have noticed that throughout the month, we are posting content providing further resources and education about epilepsy and the impact CURE Epilepsy has had in the field of research. Please share these videos and articles with your friends and family to further broaden awareness of epilepsy.
In this CURE Epilepsy Update, please find information on:
- Eli’s Cheesecake Cookbook honors Adelaide Cervantes with a recipe and donates a portion of sales to CURE Epilepsy during November to celebrate Epilepsy Awareness Month
- Free Webinar | Post Traumatic Epilepsy and Cognitive Training: Improving Quality of Life Through HOPSCOTCH on November 11, 2021
- CURE Epilepsy CARES | Virtual Event on November 19, 2021
- FDA approves EPRONTIA, liquid formulation of topiramate
- Giving Tuesday is November 30, 2021
- Register for the 2021 PAME Meeting taking place on December 2, 2021
- What’s New from the Seizing Life® Podcast
Chicago Legend and Longtime CURE Epilepsy Champion Eli’s Cheesecake Launches Cookbook and Donates Proceeds During Epilepsy Awareness Month
It is almost too good to be true! You can support epilepsy research, honor the Cervantes family, and participate in Epilepsy Awareness Month by purchasing the Eli’s Cheesecake Cookbook. This newly updated edition features the recipe for the Red Velvet Chocolate Chip Cheesecake, an homage to Miguel’s and Kelly’s Adelaidybug.
Proceeds from cookbooks (and cookbook/cheesecake combination purchases) sold in November will be donated to CURE Epilepsy. Be sure to enter the code CURE21 as a promo code when checking out!
Free Webinar: Post-Traumatic Epilepsy (PTE) and Cognitive Training: Improving Quality of Life Through HOBSCOTCH
Tune in on Wednesday, November 10th at 2 pm CT to hear Dr. Elaine Kiriakopoulous provide an overview of PTE and cognitive dysfunction, as well as some strategies to help improve the quality of life of those with PTE and their caregivers. The webinar will also provide details about HOBSCOTCH (Home Based Self-Management and Cognitive Training Changes Lives), a behavioral program developed by Dartmouth College to address memory and attention problems in adults with epilepsy and discuss a clinical trial opportunity for veterans and civilians living with PTE.The webinar is free to attend and is intended for everyone, including people with epilepsy, their friends, family, and caregivers.
Wednesday, November 10th | 2:00 pm CT
CURE Epilepsy CARES Virtual Event | Zoom Teleconference
On Friday, November 19th at 12:30 pm CT our virtual CARES event will feature adult neurologists, pediatric neurologists, and epilepsy researchers from the San Francisco area. They will share insights and answer your questions about the latest cutting-edge research and epilepsy treatments. You can also submit questions ahead of time here.
Register now for our virtual CARES event featuring:
- Brenda Porter, MD, PhD (Stanford University)
- Martha Morrell, MD (Stanford University)
- Adam Numis, MD (UCSF)
- Michael Rogawski, MD, PhD (UC Davis)
Don’t miss this opportunity to Zoom with these internationally recognized epilepsy experts!
Friday, November 19, 2021 – 12:30 pm CT
FDA Approves EPRONTIA, Liquid Formulation of Topiramate
Azurity Pharmaceuticals has announced that the U.S. Food and Drug Administration (FDA) has approved EPRONTIA™ (topiramate) oral solution, 25 mg/mL. Topiramate (also known by the brand name Topamax®) is used for the treatment of partial-onset or primary generalized tonic-clonic seizures in patients 2 years of age and older, and as adjunctive therapy for the treatment of partial-onset seizures, primary generalized tonic-clonic seizures, or seizures associated with Lennox-Gastaut syndrome in patients 2 years of age and older. It is also used as preventive treatment of migraine in patients 12 years of age and older. Additional information is available at www.eprontia.com or speak with your treating physician.
Azurity has generously offered to make a $15 donation on your behalf to the charity of your choice. Please go to www.eprontia.com, scroll down, and click on the hotlink to select CURE Epilepsy as a recipient of the donation so that we can put more dollars to work funding research!
#GivingTuesday is November 30, 2021
Join the #GivingTuesday movement on Tuesday, November 30. When you donate through Facebook, start a Facebook Fundraiser, or donate to one on #GivingTuesday, Facebook will match up to $8 million of donations. Facebook donations will be matched dollar-for-dollar on a first-come basis starting at 8 am ET (5 am PT).
Kick-off your giving season with #GivingTuesday and have an impact on funding critical research to find a cure for epilepsy!
Registration for the 2021 PAME Meeting Open
Join Partners Against Mortality in Epilepsy (PAME) on December 2 at 8 am CT for a full-day conference. The overall mission of PAME is to convene, educate, and inspire all stakeholders to promote understanding and drive prevention of premature epilepsy mortality. This year’s conference will feature sessions on Hot Topics in Mortality in Epilepsy Research, Navigating the Psychological Impacts of Epilepsy on the Individual and Family, and so much more. PAME is also offering a free live stream for those unable to travel to Chicago.
What’s New from the Seizing Life® Podcast
- Catch up on the latest episodes of the Seizing Life podcast. Over the past month, we learned about:
- SUDEP – Dr. Elizabeth Donner speaks with Kelly and shares more about we should know about sudden unexpected death in epilepsy, what you can do to hopefully mitigate the risk and more about promising research that will help us better understand how we can prevent it. Listen or Watch
- Post-Traumatic Epilepsy (PTE) – Dr. Lauren Harte-Hargrove provides insight on the connection between traumatic brain injury and PTE and current research to better understand this phenomenon. We also hear from two former army veterans who talk about living with PTE. Listen or Watch
Do you have a story you want to tell about how epilepsy has impacted your life, your family, or your community? Please share your epilepsy truth on our website.