The sixth annual Epilepsy Awareness Day will be held at Disneyland Resort from November 5 – 7, 2018. Epilepsy Awareness Day at Disneyland was founded out of one family’s thankfulness for their young daughter’s recovery and a community-wide passion for the fight against epilepsy. Now, the event is held every year in November (Epilepsy Awareness Month) for epileptic patients and their families to enjoy Disneyland Resort and spread awareness.
Epilepsy Awareness Day at Disneyland is an annual event operated by the Irvine based nonprofit foundation Sofie’s Journey/Epilepsy Awareness Day. “We wanted to create an opportunity to drive epilepsy awareness, with awareness the key to overcoming challenges created by epilepsy,” stated Candy Levy, the non-profit’s cofounder, in a press release for the 2017 event. “At our event we bring together patients, physicians, advocates, non-profits, services, pharma and [in 2017] we had a large section of the convention facility for people to meet their possible and future service dogs.”
Sofie’s Journey, the organization behind Epilepsy Awareness day at Disneyland, began with Sofie Levy, who had her first seizure at 5 years old. For years, her seizures intensified, until she finally underwent surgery to remove the part of the brain that was the source of her seizures. Since her surgery over nine years ago, Sofie has been seizure-free. She is now finishing high school and is studying neurodiagnostics, so that she can soon be working as an EEG Tech. Sofie’s story inspired the Levy family to start Epilepsy Awareness Day, as well as their own private family business, an in-home EEG monitoring service, catering to kids and adults specializing in Autism & Epilepsy.
Over 2,000 people and 100 support groups worldwide are expected to attend this year’s Epilepsy Awareness Day at Disneyland. This year, Epilepsy Awareness Day at Disneyland is partnering with International League Against Epilepsy and working with international and national leaders, including The Danny Did Foundation, Epilepsy Foundation, and Citizens United for Research in Epilepsy, for their commitment in uniting the world’s epilepsy communities.
This year’s Epilepsy Awareness Day at Disneyland also includes a three-day expo held at the Disneyland Hotel. The is free to attend and will feature information booths hosted by various organizations and individuals including nonprofit organizations, Epilepsy centers, service dogs, seizure device apps, and other services. Throughout the expo, guests can attend a variety of talks hosted by Epilepsy physicians and specialists from renowned hospitals and organizations. Attendees can even partake in special Disneyland Resort character photo opportunities throughout the weekend. For more information in the event schedule, visit the website here.
Each attendee who purchases a Disneyland park ticket through the Epilepsy Awareness Day website will receive a Participation Pack, which includes an event t-shirt, lunch bag cooler, commemorative magnet, and other souvenirs. Disneyland annual passholders who participate in the event can donate $25 to receive a Participation Pack. Disneyland park tickets for this event will be sold through Saturday, November 3.