In this month’s Researcher Update you’ll find information on:
- Join CURE Epilepsy for a Reception on December 4 at the 2022 American Epilepsy Society (AES) Annual Meeting in Nashville, TN
- Survey to Aid Multidisciplinary Clinics for Persons with Epilepsy Due by October 17
- NIH/NCATS Workshop: The Quest for Innovative Molecular Treatment Modalities for Intractable Disease Targets on November 17-18
Join CURE Epilepsy for a Reception on December 4 at the 2022 American Epilepsy Society (AES) Annual Meeting in Nashville, TN
Join CURE Epilepsy leadership and fellow dedicated researchers to celebrate our newest grantees over light fare and refreshments at the 2022 AES Annual Meeting. The reception will be held:
- Sunday, December 4 from 6 – 7:30 pm
- Location will be available shortly
- Check our website for updates!
We look forward to seeing you all!
Please note, this is not an official event of the 2022 AES Annual Meeting, nor is it sponsored or endorsed by AES
Survey to Aid Multidisciplinary Clinics for Persons with Epilepsy Due by October 17
The Rare Epilepsy Network (REN) is creating a roadmap of insights around the establishment of Multidisciplinary Care Clinics (MDC). An MDC is any clinic that aims to provide multidisciplinary care for medically complex patients. It need not be a formal Center of Excellence or natural history study site. This short survey aims to identify inspirations, structural options, and barriers toward the development, execution, and maintenance of MDC for persons with epilepsy and other neurodevelopmental disorders to be used by stakeholders including patient advocacy groups, clinicians, researchers, epilepsy centers, and others. Survey responses due by October 17. Please direct questions to info@rareepilepsynetwork.com.
NIH/NCATS Workshop: The Quest for Innovative Molecular Treatment Modalities for Intractable Disease Targets on November 17-18
Register now for the NIH/NCATS workshop “The Quest for Innovative Molecular Treatment Modalities for Intractable Disease Targets” to be held virtually on November 17-18, 2022. Registration is free, but virtual seating is limited. View the full agenda and register. Please direct questions to Karlie Sharma at karlie.sharma@nih.gov.
This workshop is intended for members of the extramural scientific community, government agencies, health care providers, industry, and the public to share their perspectives with the goal of identifying pain points for developing treatments against targets traditionally considered intractable to current methods of drug discovery. It is expected that outcomes from this workshop will inform future directions for pursuing targets considered ‘intractable’ and the exploration of innovative modalities, thereby expanding the pool of therapeutic approaches for treating human diseases.