My story may not be one that bettered my life, but maybe it will show need for research to cure epilepsy.
My son was 14 years old when his seizures started. They were mild at first, but over the years (despite trying many different medications) they became worse. I believe he was drug resistant and I tried suggesting other options, but doctors just kept trying new medications. He was on 4 different medications to help stop his seizure, but nothing worked.
On November 6, 2023, he was home and in his room sleeping. Or so I thought. He had a seizure and no one heard him or knew. I had checked on him many times and just thought he was sleeping. I thought I heard him, but found him lifeless. He had a seizure and suffocated.
I lost my son to epilepsy. This is why more research is important — so no one else has to lose a loved one ever again. CURE Epilepsy needs all the help and support they deserve. I hope that anyone living with epilepsy is able to be cured before it’s to late.
It would bring happiness to those living in fear or discomfort with epilepsy. It would also mean that no one else has to lose there life to this.