I have been to a number of doctors, the Mayo Clinic in Rochester, Dallas, Houston; I’ve had MRI’s, Cat Scans, EEG’s and medicines that caused several trips to the hospital from side-effects; my DNA testing reads Variant of Uncertain Significance for a gene identified PCDH19 not enough information was given.
I have helped a number of others out to help with their seizure problems but I can’t help myself out. I have been a Bookkeeper, Landscaper, a CNA, and a full-time mother. I’m also a grandmother. I was married at 18 years old, and I’m still married to him now.
In the last year, I quit working and driving because of the uncontrolled seizures. I feel judged when I am out in public when if have one, so I quit going out in public even around some of my family. I can’t take vitamin supplements, Over the Counter medicines, or vaccination shots; they interfere with my medicine. I take my AED’s on time, eat no sugar, do not smoke or drink.