In these challenging times of the COVID-19 pandemic, we are all trying to adjust to a “new normal”. But for individuals, caregivers, and families battling epilepsy, current shelter-in-place guidelines bring additional challenges and concerns. Parents already deal with unpredictable seizures, medications, doctor appointments, and therapies, which is difficult and exhausting in “normal” times, but in the midst of a global pandemic it can be overwhelming. Hear how one family is coping with the stay-at-home order and epilepsy at the same time.
Parents and grandparents of children with special needs, like our guests Jessica Rosini and Beth Scolis, in some ways are well prepared to handle this added stress. When Jessica’s son Dominic was diagnosed with Doose syndrome, a rare form of epilepsy, their “normal” drastically shifted. Jessica and her family have experienced medical challenges, bouts of social isolation, and immunosuppression since Dominic developed epilepsy, and have also discovered coping strategies to contend with these challenges.
On our first remotely recorded episode of Seizing Life, Jessica and Beth share how they coped with challenges related to Dominic’s epilepsy before the pandemic and how they are managing his doctors appointments, therapies, and medications now.
Jessica and Beth are the advocates behind DOMinate Epilepsy, a group devoted to passing Seizure-Safe School legislation in Pennsylvania.
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