Episode #39 - Parenting, Epilepsy and COVID19 featuring Jessica Rosini and Beth Scolis

Seizing Life > Parenting, Epilepsy and COVID19
Share
Subscribe

In these challenging times of the COVID-19 pandemic, we are all trying to adjust to a “new normal”.  But for individuals, caregivers, and families battling epilepsy, current shelter-in-place guidelines bring additional challenges and concerns. Parents already deal with unpredictable seizures, medications, doctor appointments, and therapies, which is difficult and exhausting in “normal” times, but in the midst of a global pandemic it can be overwhelming. Hear how one family is coping with the stay-at-home order and epilepsy at the same time.

Parents and grandparents of children with special needs, like our guests Jessica Rosini and Beth Scolis, in some ways are well prepared to handle this added stress. When Jessica’s son Dominic was diagnosed with Doose syndrome, a rare form of epilepsy, their “normal” drastically shifted. Jessica and her family have experienced medical challenges, bouts of social isolation, and immunosuppression since Dominic developed epilepsy, and have also discovered coping strategies to contend with these challenges.

On our first remotely recorded episode of Seizing Life, Jessica and Beth share how they coped with challenges related to Dominic’s epilepsy before the pandemic and how they are managing his doctors appointments, therapies, and medications now.

Jessica and Beth are the advocates behind DOMinate Epilepsy, a group devoted to passing Seizure-Safe School legislation in Pennsylvania.

Download Audio

Want to download this episode? Fill out the form below and enjoy the podcast any time you’d like!

    Back to Episode Download PDF

    Parenting, Epilepsy and COVID19 - Transcript

    Related Episodes

    featured episode
    FamilyLiving with Epilepsy
    May 3, 2023

    #115 Teen Tennis Player Remains on Court Despite Seizures and Stigma

    Guest: Reid and Ryan Rainwater

    This week on Seizing Life® Reid Rainwater and his father Ryan share Reid's epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top young players in Oklahoma.

    featured episode
    FamilyLiving with Epilepsy
    April 19, 2023

    #114 From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey

    Guest: Colleen Jendreas

    This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life.

    featured episode
    FamilyLiving with Epilepsy
    February 22, 2023

    #110 Epilepsy Can’t Stop Young Girl’s Competitive Spirit

    Guest: Christiane, Christy, and Lawrence Tsane

    This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running.

      STAY UP TO DATE

      Join our email list for the
      latest epilepsy research news,
      discoveries, and more.