Greetings, CURE community! This month I had the pleasure of attending Purple Day at Disney World. This wonderful event reminded me of the importance of collaboration in achieving a goal.
Curing epilepsy is a team effort involving the patient community, medical professionals, researchers, and advocacy organizations. Every day, we are grateful to have you by our side and to work with partners throughout the field of epilepsy to realize our mission of finding a cure. In this update, learn about our latest advocacy collaboration with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago.
Beyond Chicago, so many are working to improve the world for those impacted by epilepsy, whether through research, education, or fundraising. In this update, learn about how you and your community can make a difference:
Who needs to be educated on seizure first aid? Everyone. This video, featuring pediatric epileptologist Dr. Linda Laux, discusses basic steps to take when someone is having a tonic-clonic seizure. Share this information with teachers, community leaders, employers, and anyone else you think could benefit from knowing what to do in the event of a seizure.
New Therapies for Seizure Emergencies Now Available
Two nasally administered seizure rescue medications are now commercially available to patients.
Nayzilam® (midazolam nasal spray) (CIV): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 12 years of age and older. Learn More
Valtoco® (diazepam nasal spray): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 6 years of age and older. Learn More
Brook Hodgeman, who was diagnosed with epilepsy as a child, is one of our amazing CURE Scholars determined to become an agent of change in the epilepsy community.
Hear from Brook about how his involvement with the CURE Scholarship program is propelling him toward his dream of becoming a neurologist and epilepsy researcher.
Coast to coast, Team CURE is racing toward a future without epilepsy! From marathons to 5Ks, we have races planned across the US in California, New York, Illinois, and beyond this year.
When you race for Team CURE and meet fundraising goals, you’ll receive exclusive swag! Join Team CURE or find out about upcoming races by emailing events@www.cureepilepsy.org.
Chicago: Here’s What 1 in 26 Looks Like
We’ve partnered with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago to demonstrate just how many people will be impacted by epilepsy in the US. Together we’ve launched ads like the one you see here at Chicago “L” train stations and other city hot spots. When you see one, snap a picture and tag us on Instagram at @CUREepilepsy for a chance to be featured!
Advances in seizure emergency medications. Learn More
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How Yoga May Help Reduce Epilepsy Seizures, Anxiety
“Our study showed that doing yoga can alleviate the burden of epilepsy and improve the overall quality of life by reducing this perceived stigma.”
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Newer Antiseizure Medications (ASMs) Show Effectiveness in Dravet Syndrome
The data gathered in this study will allow healthcare providers “to have reliable data and enable discussion with caregivers of people with [Dravet syndrome] about the expected outcomes” of these medications, the team wrote.
November 20, 2023
NIH Grant Expands UIC Brain Bank into Citywide Effort to Study Epilepsy, Brain Cancer
INTUITION is a software platform that automatically gathers disparate data types and combines them into user-friendly interfaces for clinicians and researchers.
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New Therapies for Seizure Emergencies Now Available
#RunLikeAChampion Across the US!
Chicago: Here’s What 1 in 26 Looks Like