March 6, 2020

CURE Update: Collaborating Toward a Cure

Greetings, CURE community! This month I had the pleasure of attending Purple Day at Disney World. This wonderful event reminded me of the importance of collaboration in achieving a goal.

Curing epilepsy is a team effort involving the patient community, medical professionals, researchers, and advocacy organizations. Every day, we are grateful to have you by our side and to work with partners throughout the field of epilepsy to realize our mission of finding a cure. In this update, learn about our latest advocacy collaboration with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago.

Beyond Chicago, so many are working to improve the world for those impacted by epilepsy, whether through research, education, or fundraising. In this update, learn about how you and your community can make a difference:

Warmest,

Beth Lewin Dean

Beth Lewin Dean, CEO

Seizure SafetySeizure First Aid Everyone Should Know

Watch and Share

Who needs to be educated on seizure first aid? Everyone. This video, featuring pediatric epileptologist Dr. Linda Laux, discusses basic steps to take when someone is having a tonic-clonic seizure. Share this information with teachers, community leaders, employers, and anyone else you think could benefit from knowing what to do in the event of a seizure.

Seizure Rescue MedsNew Therapies for Seizure Emergencies Now Available

Nayzilam | Valtoco

Two nasally administered seizure rescue medications are now commercially available to patients.

  • Nayzilam® (midazolam nasal spray) (CIV): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 12 years of age and older. Learn More
  • Valtoco® (diazepam nasal spray): indicated for the short-term treatment of seizure clusters (also known as acute repetitive seizures) in patients 6 years of age and older. Learn More

CURE Scholar SpotlightCURE Scholar Spotlight: Brook Hodegman

Watch

Brook Hodgeman, who was diagnosed with epilepsy as a child, is one of our amazing CURE Scholars determined to become an agent of change in the epilepsy community.

Hear from Brook about how his involvement with the CURE Scholarship program is propelling him toward his dream of becoming a neurologist and epilepsy researcher.

Now accepting applications for 2020! CURE Scholarships are made possible by the generous support of Greenwich Biosciences.

Team CURE#RunLikeAChampion Across the US!

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Coast to coast, Team CURE is racing toward a future without epilepsy! From marathons to 5Ks, we have races planned across the US in CaliforniaNew YorkIllinois, and beyond this year.

When you race for Team CURE and meet fundraising goals, you’ll receive exclusive swag! Join Team CURE or find out about upcoming races by emailing events@cureepilepsy.org.

1 in 26Chicago: Here’s What 1 in 26 Looks Like

We’ve partnered with the Danny Did Foundation and the Epilepsy Foundation of Greater Chicago to demonstrate just how many people will be impacted by epilepsy in the US. Together we’ve launched ads like the one you see here at Chicago “L” train stations and other city hot spots. When you see one, snap a picture and tag us on Instagram at @CUREepilepsy for a chance to be featured!

Seizing LifeNew from Seizing Life®, a CURE Podcast

Watch or Listen

Catch up on the latest episodes of the Seizing Life podcast where we discuss:

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