February 4, 2020

CURE Update: #EpilepsyDay is Almost Here!

 

Greetings, CURE community! This month we’re joining organizations in over 120 countries in celebrating International Epilepsy Day on February 10. While an estimated 65 million people worldwide are diagnosed with epilepsy, research aimed at finding a cure remains sorely underfunded. Last summer, the World Health Organization released its first global report on epilepsy with the goals of raising public awareness of the critical needs of the epilepsy community, encouraging investment to reduce the burden, and advocating for actions to address gaps in epilepsy knowledge, care, and research.

In this update, you can discover how to support epilepsy research and raise awareness about the need for advances toward a cure. In addition, please find information on:

International Epilepsy Day

#EpilepsyDay: Spread the Word about the Need for a Cure!

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February 10 is International Epilepsy Day and you can join this global movement to increase awareness about epilepsy and the need for a cure. To celebrate this worldwide event:

Webinar

Webinar and Live Q&A: The ABCs of EEGs

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From diagnosis to determining surgical eligibility, EEGs are a critical tool in the field of epilepsy. In our webinar on February 10 at 11:00AM CT, Dr. David Burdette will explain the different types of available EEGs and what patients can expect from each. In addition, he will explore the recent advances in EEG and other neuroimaging technology that have direct, positive impacts on patients.

This webinar is generously supported by the BAND Foundation.

Rock'n'Roll Race Series

#RunLikeAChampion in Rock’n’Roll Races Nationwide!

Team CURE is rocking to support epilepsy research in Rock’n’Roll races across the US. We want you to join us in:

Meet fundraising goals to receive exclusive swag! Join Team CURE by emailing events@cureepilepsy.org.

Seizing Life

New from Seizing Life®, a CURE Podcast

Watch or Listen

In honor of International Epilepsy Day, we’re launching a globally focused episode of the Seizing Life podcast next week! Catch a sneak peek now.

Plus, catch up on the latest episodes where we discussed:

  • Advances in rescue therapies to manage seizure clusters.
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  • How former NFL star and broadcaster Mike Adamle and his wife, Kim, manage his post-traumatic epilepsy and CTE symptoms.
    Learn More
Setting Research Priorities

Curing the Epilepsies 2020: Setting Research Priorities

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When CURE was founded in 1998, Susan Axelrod and the other founding mothers were frustrated by the lack of research addressing why their children’s seizures could not be stopped, what caused their epilepsy, and why answers did not exist. These mothers challenged the research community to focus on finding cures and worked to establish the first National Institute of Health (NIH) conference centered around curing epilepsy. Since that first meeting, held in March of 2000 and initiated by the Clinton White House, CURE has continued to play a pivotal role in the sequels to this conference and now is instrumental in gearing up for the next iteration.

You can help set these priorities. NIH is looking for patients, caregivers, and advocates to lend their voices in deciding the future of epilepsy research. Discover how you can make comments or suggestions here.

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