Our Leaders in Epilepsy Research Webinar Series is back! You can discover research on family planning and epilepsy, in addition to learning strategies for minimizing risk to women and infants during pregnancy in our latest webinar: Epilepsy, Pregnancy, and Contraception.
Below, read about our upcoming webinar on Transitioning from Pediatric to Adult Epilepsy Care. Also, in this update:
- CURE Scholarship Application Deadline: April 15
- New from Seizing Life, a CURE Podcast
- Join Us at Day of Science Events in Houston and Boston
- CURE Champion Spotlight: Lauren Nathan Raises Funds for a “Real-Life Princess” with Epilepsy
- Next CURE Events
Webinar: Transitioning from Pediatric to Adult Epilepsy Care
It is critical for patients, parents, and neurologists to have a plan while transitioning from pediatric to adult epilepsy care. During a free webinar and live Q&A on Thursday, April 25 at 2:00PM CT, learn about research-based guidelines for developing a transition care plan, as well as what factors to consider during the transition.
Bring your questions for the live Q&A! You can ask the presenter, Dr. Joseph Sirven, questions such as:
- Is the transition of care plan dependent upon a patient’s epilepsy type?
- Do treatment options change when a patient begins seeing an adult neurologist?
- What research has been done into the effects of transition care on a patient’s lifestyle?
This webinar is supported by the generosity of the BAND Foundation.
CURE Scholarship Application Deadline: April 15
The application deadline for the 2019 Education Enrichment Fund (EEF) scholarships is April 15. These scholarships cover up to $5,000 of each recipient’s tuition, books, and any other course-required materials.
Made possible by generous support from Lundbeck, this one-time scholarship is awarded to those living with epilepsy or to family members and caregivers of those impacted by epilepsy. The scholarship supports coursework aiming to advance personal knowledge in epilepsy research, health education, awareness, or advocacy.
Questions? Please reach out to us at firstname.lastname@example.org.
New from Seizing Life, a CURE Podcast
Catch up on the latest episodes of the CURE podcast Seizing Life! Last month, we explored:
- The memoir A Mind Unraveled with author Kurt Eichenwald: Watch or Listen
- How epilepsy research has changed over 20 years with CURE Founder Susan Axelrod: Watch or Listen
- The ways Individualized Education Programs (IEPs) can help students with epilepsy with moms, Stacy Pigott and Shalee Cunneen: Watch or Listen Now
- Genetics and how epilepsy genetic testing can help patients with Dr. John Millichap: Watch or Listen
You can find Seizing Life on your favorite podcasting app or on our website, www.seizinglife.org.
Join Us at Day of Science Events in Houston and Boston
This free event is happening in Houston on Saturday, March 30 and in Boston on Saturday, May 11.
During Day of Science, a panel of epilepsy experts address audience questions and participate in small-group discussions over a provided lunch with the attendees.
Join us for answers to questions, such as:
- What targeted treatments have been developed due to the discovery of new epilepsy genes?
- What are the risks associated with epilepsy surgery?
- What epilepsy drugs are currently in development and what types of epilepsy can they be prescribed to treat?
Stay tuned: More Day of Science locations around the US will be announced soon!
These events are made possible thanks to the generous support of the BAND Foundation and Sunovion.
CURE Champion Spotlight: Lauren Nathan Raises Funds for a “Real-Life Princess” with Epilepsy
CURE Champion Lauren Nathan raised $2,600 after being inspired by little Adelaide Cervantes, who was diagnosed with Infantile Spasms at just 7 months of age. Lauren and her husband, Jeff, are good friends of Adelaide’s parents, Kelly and Miguel Cervantes. Seeing her friends battle epilepsy moved her to act.
To honor Adelaide, who Lauren calls a real-life princess, she signed up for the Disney Fairytale Challenge, determined to raise vital funds to support CURE. The 2-day challenge involves completing the Enchanted 10K followed by the Princess Half-Marathon, totaling 19.3 miles.
When training got tough, Lauren remembered the daily challenges Adelaide and the Cervantes family face. “To be inspired is really amazing. It can push you further and harder than you will ever even know,” said Lauren.
On February 22 and 23, she conquered both races in the intense Florida heat, raising epilepsy awareness and funds in honor of little princess Adelaide.
Feeling inspired to fundraise in honor of someone in your life? Learn how to become a CURE Champion.
Next CURE Events
March 8-14: Blo Wicker Park Grand Opening – Chicago, IL
March 30: Day of Science in Houston – Houston, TX
March 31: Million Dollar Quartet – Munster, IN
April 14: 5k Strides for Epilepsy Run/Walk – Salisbury, MD
April 25: Webinar: Transitioning from Pediatric to Adult Care, Online
May 11: Day of Science in Boston – Boston, MA