Registry of SUDEP in Children

Sudden Unexpected Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children. The objective of Dr. Donner’s research is to recognize which children are at the greatest risk of SUDEP. Using a network of collaborators across Canada, she will implement a registry that will collect data on every child in Canada with SUDEP. The registry will also be used to identify risk factors for SUDEP. Dr. Donner and her collaborators will develop recommendations for health care providers so they can recognize and identify those children at the greatest risk for SUDEP, as well as identify protective measures to prevent deaths.