Greetings CURE Epilepsy community,
In January of this year, the epilepsy community came together for the Curing the Epilepsies Conference. This conference, which occurs every seven years or so, sets the priorities to help advance research toward cures and improved health outcomes for people with epilepsy. Following this conference, members of the epilepsy advocacy group community, including CURE Epilepsy’s Chief Scientific Officer, Laura Lubbers, wrote an editorial highlighting the critical needs to achieve this goal, which include integrating epilepsy care and research and reducing health disparities for underserved communities. They also noted that creating a National Plan that would accelerate the goals of improving quality of life and developing cures for every person touched by epilepsy is key to attaining these transformative changes.
One of the many ways that we at CURE Epilepsy support these goals is to inspire students to pursue careers and become the future of epilepsy research. That’s why we’re happy to announce our 2021 class of Education Enrichment Fund scholars. From aspiring artists to budding neuroscientists, these exceptional students aim to become agents of change within the epilepsy community.
In this CURE Epilepsy update, please find information on:
- Editorial: Epilepsy Community at an Inflection Point, by CURE Epilepsy’s Chief Scientific Officer Dr. Laura Lubbers
- CURE Epilepsy Announces 2021 Education Enrichment Fund Scholars
- Unite to CURE Epilepsy Benefit on September 17
- Team CURE Epilepsy Entries available for the LA and NY Marathons
- Matt Schneider, JD joins the CURE Epilepsy Board of Directors
- Free webinar from PAME on July 16: Sleep, Night, and SUDEP
- What’s New from the Seizing Life® podcast
Editorial: Epilepsy Community at an Inflection Point, by CURE Epilepsy’s Chief Scientific Officer Dr. Laura Lubbers
Following up on the Curing the Epilepsies Conference, CURE Epilepsy Chief Scientific Officer Dr. Laura Lubbers, Scientific Advisory Council member Dr. Eric Marsh, and others from the epilepsy community share their perspectives on the critical needs for epilepsy research in an editorial in Epilepsy Currents. Read their thoughts here.
CURE Epilepsy Announces 2021 Education Enrichment Fund Scholars
CURE Epilepsy, in partnership with Greenwich Biosciences, was pleased to announce the 2021 class of Education Enrichment Fund (EEF) Scholars last month. Our ten scholars will together receive $50,000 to advance their education while working to build a brighter future for those impacted by epilepsy. Read more about each individual and how they plan to become agents of change within the epilepsy community.
CURE Epilepsy Champion Summit – August 27
Register
Looking to create your first CURE Epilepsy Champion event? Or, are you are a current Champion looking to grow or refine your existing event? If either of these describes you, join us on Friday, August 27th at 12pm CT for our CURE Epilepsy Champion Summit. At this virtual summit, you will learn strategies from some of our most successful CURE Epilepsy Champions and discuss other ways to be involved.
Unite to CURE Epilepsy Benefit on September 17
Join live host Mike Barnicle, award-winning journalist, contributor to MSNBC’s Morning Joe, and Julia’s dad, for an evening filled with engaging entertainment, moving stories from those in the epilepsy community, and promising updates from leading researchers. Be part of the fun! Host a Watch Party and connect with the broader CURE Epilepsy family.
Team CURE Epilepsy Entries Available for the LA and NY Marathons
Sign up
We still have spots available in the Los Angeles and New York marathons! Contact us to learn more about how you can join Team CURE Epilepsy and run to support the 1 in 26 impacted by epilepsy.
Matt Schneider, JD joins the CURE Epilepsy Board of Directors
Please welcome Matthew Schneider, JD, to the CURE Epilepsy board! Matt refers to epilepsy as “the family business” since four of his loved ones live with epilepsy. Matt first joined the CURE Epilepsy research committee and looks forward to serving on the CURE Epilepsy board with particular interest around the genetics of epilepsy and data driven approaches to finding cure(s).
Free webinar from PAME on July 16: Sleep, Night, and SUDEP
Understanding the connection between night, sleep, and SUDEP may provide clues to improving preventive measures. Join PAME, Friday, July 16 at 11:00 am CT for a free 90-minute webinar to learn about the latest in basic science and clinical research on sleep, circadian rhythms, and SUDEP. Clinicians, scientists, advocates, people with epilepsy, and family members are welcome to participate.
New from the Seizing Life®, a CURE Epilepsy Podcast
Watch or Listen
Catch up on the latest episodes of our?Seizing Life?podcast and hear about:
- Geoff’s grieving process after losing his wife to SUDEP, including what he has personally found helpful, helping his son cope with the loss, and raising awareness about SUDEP: Watch or Listen.
- Jon’s 50-year journey with epilepsy, a microcosm of what has been accomplished, and a directive highlighting the work that remains: Watch or Listen.
Do you have a story you want to tell about how epilepsy has impacted your life, your family, or your community? Please share your epilepsy truth on our website.