Notes from the Field
CURE Epilepsy has always been a funder, a convener, and a doer. Collaborating with scientists, coalition partners, and community members builds bridges and fosters innovation. Over the past year, donor investment has helped facilitate the exchange of ideas across numerous meetings and events, including…
American Epilepsy Society (AES) 2024 Conference
Highlights include fourteen poster presentations featuring CURE Epilepsy-funded work, more than 200 researchers being in attendance at the CURE Epilepsy reception, and CURE Epilepsy leadership team presenting for Infantile Spasms Action Network (ISAN) and Rare Epilepsy Network (REN) gatherings.
SUDEP Risk Assessment and Prevention Workshop
Date: October 2024
Location: New York City, Ovid Therapeutics offices
Partners: Epilepsy Foundation & Cameron Boyce Foundation
Participants: 20+ researchers and families, including Maria Teresa Ioannou from the Joanna Sophia Foundation, who opened the meeting with the personal story of her daughter Joanna
Goal: Identify additional factors that may contribute to SUDEP risk and discuss the development of a risk assessment tool for the community
Outcomes: New team science grant opportunity to fund additional clinical SUDEP research (projects starting Spring 2026).
Scientific Salons Across the Country
Rare Epilepsy Partnership grantee Dr. Jillian McKee of CHOP spoke to CURE Epilepsy supporters at Board Member Matthew Schneider’s Maryland home during a June 2024 scientific salon. Dr. Walter Koroshetz, NINDS Director (pictured below, left), was in attendance and added to the robust discussion.
Thanks to the work of supporter Francesca Calloway (pictured below, right), 90 researchers gathered at the Jonathan Club in Los Angeles in September 2024 to learn more about CURE Epilepsy and hear from Taking Flight grantee Dr. Ranmal Samarasinghe of UCLA.
Explore the 2024 CURE Epilepsy Report
