September 2, 2021

CURE Epilepsy Update: September 2021

Greetings CURE Epilepsy community,

Unite to CURE Epilepsy, our virtual community fundraising event, is only two short weeks away!
I hope you will join us on Friday, September 17th at 7pm CT for this free event that will bring together the community from around the world to help raise funds for research to find cures for the many types of epilepsy. For more information and to register to participate, click here.

Unite to CURE Epilepsy will be hosted by award-winning journalist, contributor to MSNBC’s?Morning Joe Mike Barnicle and feature Nils Lofgren, Miguel Cervantes, Chef Rick Bayless, and others, for an evening filled with engaging entertainment, moving stories from the epilepsy community, and promising updates from leading researchers.

We’d like to also invite you to host a Watch Party for your friends and family. Whether it’s 4 people in your living room or 40 in your backyard, a Watch Party is a great way to bring people together and share in the evening. Just check the box to host a watch party when you complete the registration form. As an Official Watch Party Host, you will receive a special packet containing additional information, educational materials, and more to help make your Unite to CURE Epilepsy viewing experience even better!

In this CURE Epilepsy update, please find information on:

Thank you for your enduring support of research toward a cure for epilepsy.


Become a Champion
Watch the Summit

We want to give a BIG THANK YOU to the Cunneens for being such
amazing Champions and raising over $85k at the 6th annual Ella’s Race event! They brought their whole neighborhood together and
surpassed their goal of $50k! We truly appreciate all of your support.

Whether you’re an established CURE Epilepsy Champion like the Cunneens or looking to create your first Champion event, check out our virtual summit to hear fundraisers’ stories on why and who they raise money for, and creative ideas for your own event.  You’ll learn strategies, tips, and tricks from some of our most successful CURE Epilepsy Champions. Every fundraiser held helps us raise crucial dollars for epilepsy research, and no event is too big or too small. Whether it’s a lemonade stand that raises $8 or an event like Ella’s race that raises over $85k, every dollar raised brings us a step closer to a cure.

Not sure where to start?
Check out the full summit video here


LAST CHANCE to Join Team CURE Epilepsy in New York and Los Angeles Marathons
Learn More

FINAL CALL! Run to fund research for a cure for epilepsy!
You don’t have to race to be first place to join Team CURE Epilepsy, we still have entry spots available for the 2021 TCS New York City Marathon and the Los Angeles Marathon.

Contact us to learn more about how you can?join?Team CURE Epilepsy and?run to support the 1 in 26 impacted?by?epilepsy.?Registration through CURE Epilepsy closes Sept 15th.

Register here:

NYC Marathon

LA Marathon


Free Webinar: Non-Epileptic Seizures: Diagnosis, Treatment, and Management Strategies
Learn More

This free webinar will help viewers recognize the signs, symptoms,
and history associated with the presentation and diagnosis of
non-epileptic seizures (NES), discuss the diagnosis of NES with patients and families to enable acceptance of treatment, and identify the management options available for patients with NES and their families.

The webinar will be presented on
Tuesday, September 28th
12:00 pm CDT

Register Here


What’s New from the Seizing Life® Podcast
Watch or Listen

Catch up on the latest episodes of our Seizing Life podcast, and listen in as we chat with:

  • CEO Beth Dean, who explains how CURE Epilepsy funds research, takes us through the process of reviewing scientific ideas, and clarifies how the organization’s approach allows researchers the opportunity to test and advance promising data that may be considered a little “risky”. Watch or Listen.
  • Dr. Charles Marcuccilli, who talks about why the many truths of epilepsy aren’t well-known and what patients, caregivers, and healthcare professionals can do to educate others and reduce epilepsy stigma. Watch or Listen.


Do you have a story you want to tell about how epilepsy has impacted your life, your family, or your community? Please share your epilepsy truth on our website.

 

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