COVID-19 pandemic-induced disruptions can be detrimental for people with epilepsy, and restoring services to the pre-covid levels as well as putting appropriate continuity plans in place for care of people with epilepsy should be a priority.
Pediatric Epilepsy
Dravet syndrome (DS) is still seen as a "pediatric disease", where patients receive excellent care in pediatric centers, but care is less than optimal in adult health care systems (HCS). This creates a barrier when young adults need to leave the family-centered pediatric system and enter the adult, patient-centered HCS.
To review the standard of clinical care of people with epilepsy (PWE) attending UK general practice after epilepsy was removed from the Quality and Outcomes Framework (QOF) in 2014.
Around 25% of people with Intellectual Disability (PwID) have comorbid epilepsy with seizures in up to two-thirds being drug-resistant. Little is known of the general characteristics and prescribing practices to this population.
Ketogenic Diet
Sleep disorders are common in drug-resistant children with epilepsy and their mothers. Ketogenic diet therapy (KDT) may have positive effects on sleep quality.
Self-stigma is the internalization of negative public attitudes and is often experienced by patients with epilepsy (PWE). Greater self-stigma is associated with lower self-esteem and hinders therapeutic behavior.
There is evidence that developmental and epileptic encephalopathies (DEEs) can impact health-related quality of life (HRQL) and emotional wellbeing and can limit usual activities for the primary caregiver and their wider family.
This month’s research news features discoveries by three researchers in the CURE Epilepsy community and their teams.
The epilepsy phenotype in children with 15q13.3 microdeletion syndrome is defined by childhood onset absence seizures, and may have atypical features such as, early onset absences, persistence into adolescence, status epilepticus, intellectual disability and treatment resistance.
