Pediatric Epilepsy
A multiple stakeholder group developed clinical common data elements (CDEs) for routine care of children with epilepsy. Clinical CDEs are foundational for learning health care systems, a data?driven approach to health care focused on continuous improvement of outcomes.
In our traumatic brain injury model, tracking changes in non-rapid eye movement delta power distinguishes controlled cortical impact acutely and animals that will eventually develop post-traumatic epilepsy (PTE), but further work is necessary to identify sleep biomarkers of PTE.
The risk of increased seizures to pregnant women with epilepsy is no different to that of non-pregnant controls, as long as they have their medication levels monitored.
SUDEP
The study provided a deeper understanding of molecular, cellular, and network-level operations of the identified regulators that lead to cardiac changes in epilepsy.
Pediatric Epilepsy
The study concludes that knowing the child well and understanding the usual behavior of the child is crucial to seizure recognition.
The level of physical activity in people with epilepsy is only slightly lower than in controls (8% lower score) and it may be explained by lower occupational physical activity, probably related to lower employment rate among people with epilepsy.
These findings suggest that people with epilepsy are currently experiencing health changes, coupled with inadequate access to services. Those involved in healthcare delivery must ensure optimal care is provided for people with chronic conditions, such as epilepsy, to ensure that avoidable morbidity and mortality is prevented during the pandemic, and beyond.
Genetics
Comprehensive care and support for both the child and family have important roles to play in helping families to thrive despite the severity of CDKL5 Deficiency Disorder.
Pediatric Epilepsy
We found that all interventions were significant and effective ways to establish basic knowledge about epilepsy in the given age group.
